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Committee Detail

Hide Section - GENERAL INFORMATION

GENERAL INFORMATION

Committee NameNational Advisory Council for Human Genome ResearchAgency NameDepartment of Health and Human Services
Fiscal Year2019Committee Number943
Original Establishment Date11/17/1962Committee StatusChartered
Actual Termination Date Committee URLhttp://www.genome.gov/10000905
New Committee This FYNoPresidential Appointments*No
Terminated This FYNoMax Number of Members*23
Current Charter Date5/8/2018Designated Fed Officer Position Title*Deputy Director, Division of Extramural Operations
Date Of Renewal Charter5/8/2020Designated Federal Officer Prefix
Projected Termination Date Designated Federal Officer First Name*Rudy
Exempt From Renewal*NoDesignated Federal Officer Middle Name
Specific Termination AuthorityDesignated Federal Officer Last Name*Pozzatti
Establishment Authority*Statutory (Congress Created)Designated Federal Officer SuffixPH.D.
Specific Establishment Authority*42 USC. 284(a)Designated Federal Officer Phone*301-496-8739
Effective Date Of Authority*11/20/1985Designated Federal Officer Fax*
Committee Type*ContinuingDesignated Federal Officer Email*pozzattr@exchange.nih.gov
Presidential*No
Committee Function*Other Committee
Hide Section - RECOMMENDATION/JUSTIFICATIONS

RECOMMENDATION/JUSTIFICATIONS

Agency Recommendation*Continue
Legislation to Terminate RequiredNot Applicable
Legislation StatusNot Applicable
How does cmte accomplish its purpose?*Section 492 of the PHS Act states that The Secretary...shall by regulation require appropriate technical and scientific peer review of -- (A) applications...; and (B)...biomedical and behavioral research and development contracts.... This council is composed of both scientific and public members who provide the second level of peer review; advise on policy development, program implementation and evaluation; and identify research needs and opportunities of the National Human Genome Research Institute (NHGRI).The National Advisory Council for Human Genome Research reviewed 660 applications requesting $1,157,484,190.
How is membership balanced?*The National Advisory Council for Human Genome Research is composed of 18 members with research interests and responsibilities paralleling those of the National Human Genome Research Institute. Of the 18 appointed members, 12 are from the leading representatives of the health and scientific disciplines relevant to the activities of the Institute, particularly representatives of the health and scientific disciplines in the areas of basic genetics, medical genetics, genomics, human genetics, molecular biology, biochemistry, chemistry, information science, mathematics, and engineering, and not less than two individuals who are leaders in the fields of public health and the behavior or social sciences. Six of the members are from the general public and include leaders in the fields of public policy, health policy, management, law, and economics.
How frequent & relevant are cmte mtgs?*Meetings are held not less than three times each fiscal year. The National Advisory Council for Human Genome Research provides advice on a continuing basis on the type of scientific research programs that should be supported and on how to carry out the designated mission and responsibilities of the Institute. It also provides ongoing review of the relevance and effectiveness of the existing programs.
Why advice can't be obtained elsewhere?*The National Advisory Council is composed of both scientific and public members who provide the second level of peer review; advise on policy development, program implementation and evaluation; and identify research needs and opportunities of the National Human Genome Research Institute. The quality, scope, and balance of advice from this council cannot be obtained from NIH staff or from other established sources because the membership of the council is constituted to meet the specific requirements of the mandated mission of the council and of the Institute.
Why close or partially close meetings?The meetings of the National Advisory Council for Human Genome Research were partially closed to the public for the review of grant applications and/or contract proposals. Sections 552b(c)(4) and 552b(c)(6) of the Government in the Sunshine Act permit the closing of meetings where discussion could reveal confidential trade secrets or commercial property such as patentable material and personal information, the disclosure of which would constitute a clearly unwarranted invasion of personal privacy.
Recommendation RemarksCommittee Function: Other- National Scientific and Advisory.

Reports: This committee did not produce any public reports during the fiscal year.

The DFO and Decision Maker are the same person, the Deputy Director, Division of Extramural Operations. This is a small Institute and the Director decided not to separate these roles.

Members: Boerwinkle, and Hughes-Halbert, were administratively extended until 3/30/18.
Hide Section - PERFORMANCE MEASURES

PERFORMANCE MEASURES

Outcome Improvement To Health Or Safety*NoAction Reorganize Priorities*Yes
Outcome Trust In GovernmentNoAction Reallocate ResourcesNo
Outcome Major Policy ChangesNoAction Issued New RegulationsNo
Outcome Advance In Scientific ResearchYesAction Proposed LegislationNo
Outcome Effective Grant MakingYesAction Approved Grants Or Other PaymentsYes
Outcome Improved Service DeliveryNoAction OtherNo
Outcome Increased Customer SatisfactionNoAction CommentAn action of “approved” or “recommended” for grants receiving review by this Council does not infer that the grant will be or has been funded. Research grant applications submitted to NIH must go through a two-step review process that includes the initial peer review for scientific and technical merit and a second step of review and approval by a National Advisory Council that includes program relevance. In addition, prior to an award or funding being made, NIH staff must conduct an administrative review for a number of other considerations. These include alignment with NIH’s funding principles, review of the project budget, assessment of the applicant’s management systems, determination of applicant eligibility, and compliance with public policy requirements. After all these steps have been completed, NIH officials make funding decisions on individual grant applications.
Outcome Implement Laws/Reg RequirementsNoGrants Review*Yes
Outcome OtherNoNumber Of Grants Reviewed660
Outcome CommentNANumber Of Grants Recommended660
Cost Savings*Unable to DetermineDollar Value Of Grants Recommended$1,157,484,190.00
Cost Savings CommentNIH supported basic and clinical research accomplishments often take many years to unfold into new diagnostic tests and new way to treat and prevent diseases.Grants Review CommentNA
Number Of Recommendations*32,347Access Contact Designated Fed. Officer*Yes
Number Of Recommendations CommentThe committee reviewed 660 grant applications this reporting period.Access Agency WebsiteYes
% of Recs Fully Implemented*0.00%Access Committee WebsiteYes
% of Recs Fully Implemented CommentInformation on the research funded by NIH is available through the RePORT (Research Portfolio Online Reporting Tool) website. RePORT provides access to reports, data, and analyses of NIH research activities that advance the mission of the NIH, including information on NIH expenditures, strategic plans, reports on NIH funding, and reports on the organization and people involved in NIH research and research training. The RePORT website is located at http://report.nih.gov.Access GSA FACA WebsiteYes
% of Recs Partially Implemented*0.00%Access PublicationsNo
% of Recs Partially Implemented CommentInformation on the research funded by NIH is available through the RePORT (Research Portfolio Online Reporting Tool) website. RePORT provides access to reports, data, and analyses of NIH research activities that advance the mission of the NIH, including information on NIH expenditures, strategic plans, reports on NIH funding, and reports on the organization and people involved in NIH research and research training. The RePORT website is located at http://report.nih.gov.Access OtherYes
Agency Feedback*YesAccess CommentIC Committee Management Officer 240-669-5201
Agency Feedback CommentMembers of the committee are apprised of results of their actions taken at committee meetings.Narrative Description*The goal of NIH research is to acquire new knowledge to help prevent, detect, diagnose, and treat disease and disability, from the rarest genetic disorder to the common cold. The NIH mission is to uncover new knowledge that will lead to better health for everyone. NIH works toward that mission by: conducting research in its own laboratories; supporting the research of non-Federal scientists in universities, medical schools, hospitals, and research institutions throughout the country and abroad; helping in the training of research investigators; and fostering communication of medical and health sciences information. Section 492 of the Public Health Service Act states that The Secretary....shall by regulation require appropriate technical and scientific peer review of(A) applications ...; and (B) ...biomedical and behavioral research and development contracts...The National Advisory Council for Human Genome Research provides second level peer review, makes recommendations for support of grants, contracts proposals, and cooperative agreements; advises on policy development, program implementation and evaluation; and identifies research needs of the National Human Genome Research Institute.
Hide Section - COSTS

COSTS

Payments to Non-Federal Members* Est Payments to Non-Fed Members Next FY* 
Payments to Federal Members* Est. Payments to Fed Members Next FY* 
Payments to Federal Staff* Estimated Payments to Federal Staff* 
Payments to Consultants* Est. Payments to Consultants Next FY* 
Travel Reimb. For Non-Federal Members* Est Travel Reimb Non-Fed Members nextFY* 
Travel Reimb. For Federal Members* Est Travel Reimb For Fed Members* 
Travel Reimb. For Federal Staff* Est. Travel Reimb to Fed Staff Next FY* 
Travel Reimb. For Consultants* Est Travel Reimb to Consultants Next FY* 
Other Costs Est. Other Costs Next FY* 
Total Costs$0.00Est. Total Next FY*$0.00
Federal Staff Support (FTE)* Est. Fed Staff Support Next FY* 
Hide Section - Custom Links

Custom Links

     Committee Level Reports               
Hide Section - MEMBERS,MEETINGS AND ADVISORY REPORTS

MEMBERS,MEETINGS AND ADVISORY REPORTS

To View all the members, meetings and advisory reports for this committee please click here
Hide Section - CHARTERS AND RELATED DOCS

CHARTERS AND RELATED DOCS

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Hide Section - DATA FROM PREVIOUS YEARS

DATA FROM PREVIOUS YEARS

Committee

Data from Previous Years

 
ActionCommittee System IDCommittee NameFiscal Year
 COM-002001National Advisory Council for Human Genome Research2017
 COM-002394National Advisory Council for Human Genome Research2016
 COM-004068National Advisory Council for Human Genome Research2015
 COM-004534National Advisory Council for Human Genome Research2014
 COM-006186National Advisory Council for Human Genome Research2013
 COM-006872National Advisory Council for Human Genome Research2012
 COM-008247National Advisory Council for Human Genome Research2011
 COM-009007National Advisory Council for Human Genome Research2010
 COM-010071National Advisory Council for Human Genome Research2009
 COM-010995National Advisory Council for Human Genome Research2008
 COM-012217National Advisory Council for Human Genome Research2007
 COM-012636National Advisory Council for Human Genome Research2006
 COM-014109National Advisory Council for Human Genome Research2005
 COM-014501National Advisory Council for Human Genome Research2004
 COM-015894National Advisory Council for Human Genome Research2003
 COM-016799National Advisory Council for Human Genome Research2002
 COM-017714National Advisory Council for Human Genome Research2001
 COM-018516National Advisory Council for Human Genome Research2000
 COM-019693National Advisory Council for Human Genome Research1999
 COM-020319National Advisory Council for Human Genome Research1998
 COM-021623National Advisory Council for Human Genome Research1997
 COM-034893National Advisory Council for Human Genome Research2018