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Hide Section - GENERAL INFORMATION

GENERAL INFORMATION

Committee NameInteragency Autism Coordinating CommitteeAgency NameDepartment of Health and Human Services
Fiscal Year2019Committee Number31970
Original Establishment Date7/31/2007Committee StatusChartered
Actual Termination Date Committee URLhttp://iacc.hhs.gov/
New Committee This FYNoPresidential Appointments*No
Terminated This FYNoMax Number of Members*Unlimited
Current Charter Date9/30/2018Designated Fed Officer Position Title*Director, Office of Autism Research Coordination
Date Of Renewal Charter9/30/2020Designated Federal Officer Prefix
Projected Termination Date Designated Federal Officer First Name*Susan
Exempt From Renewal*NoDesignated Federal Officer Middle NameA.
Specific Termination Authority42 USC 280i-2Designated Federal Officer Last Name*Daniels
Establishment Authority*Statutory (Congress Created)Designated Federal Officer SuffixPHD
Specific Establishment Authority*42 USC 280i-2Designated Federal Officer Phone*(301) 443-2756
Effective Date Of Authority*12/19/2006Designated Federal Officer Fax*(301) 480-1014
Exempt From EO 13875 Discretionary CmteNot ApplicableDesignated Federal Officer Email*sdaniels@mail.nih.gov
Committee Type*Continuing
Presidential*No
Committee Function*Scientific Technical Program Advisory Board
Hide Section - RECOMMENDATION/JUSTIFICATIONS

RECOMMENDATION/JUSTIFICATIONS

Agency Recommendation*Continue
Legislation to Terminate RequiredNot Applicable
Legislation StatusNot Applicable
How does cmte accomplish its purpose?*The Interagency Autism Coordinating Committee (IACC) was established in August 2007 as required by the Combating Autism Act (CAA) of 2006 (P.L. 109-416) to coordinate all efforts within the Department of Health and Human Services (HHS) concerning autism spectrum disorder (ASD). The committee was reauthorized by the Combating Autism Reauthorization Act of 2011 (CARA) (P.L. 112-32), enacted on September 30, 2011 and again by the Autism Collaboration Accountability Research Education and Services (CARES) Act, enacted on August 8, 2014. The Autism Collaboration Accountability Research Education and Services (CARES) Act of 2019 was signed by the President on September 30, 2019, reauthorizing the committee through 2024. The IACC’s charge (under the Autism CARES Act) is to: (1) develop and annually update a summary of advances in ASD research related to causes, prevention, treatment, early screening, diagnosis or ruling out a diagnosis; intervention, and access to services and supports for individuals with ASD across the lifespan of such individuals; (2) monitor autism spectrum disorder research, and to the extent practicable services and support activities, across all relevant Federal departments and agencies, including coordination of Federal activities with respect to autism spectrum disorder; (3) make recommendations to the Secretary regarding any appropriate changes to such activities, including recommendations to the Director of NIH with respect to the strategic plan; (4) make recommendations to the Secretary regarding public participation in decisions relating to ASD; (5) develop a strategic plan for the conduct of, and support for, autism spectrum disorder research, including as practicable for services and supports, for individuals with an autism spectrum disorder across the lifespan of such individuals and the families of such individuals, which shall include—(A) proposed budgetary requirements; and (B) recommendations to ensure that autism spectrum disorder research, and services and support activities to the extent practicable, of the Department of Health and Human Services and of other Federal departments and agencies are not unnecessarily duplicative; and (6) submit to the Congress and the President the annual update of the summary of advances; and (7) the strategic plan and annual updates to the strategic plan.
The IACC successfully finalized their first annual Strategic Plan for ASD Research in January 2009, and issued updated Strategic Plans in 2010 and 2011, which were delivered to Congress, the Secretary, and the Director of NIH. The IACC also issued Strategic Plan Updates in 2012 and 2013 and were delivered to the HHS Secretary and Congress. In October 2017, the IACC issued the 2016-2017 IACC Strategic Plan for Autism Spectrum Disorder, which contains an entirely new set of 23 objectives that describe the top priority areas for autism research and services based on their analysis of research progress and changes in services over the last several years. The IACC Strategic Plan and its subsequent updates have been produced through collaborative effort between the IACC, scientists, advocacy organizations, and the public to identify needs and opportunities for research, services and policy to improve the lives of individuals with autism spectrum disorder and their families. The plan cites specific objectives for different areas of ASD research and services, including diagnosis, biology of ASD, risk factors, treatments, services, lifespan issues, surveillance/infrastructure/workforce/outreach. In April 2019, the IACC issued its annual Summary of Advances in ASD Research, describing the top 20 ASD research advances identified by the committee from research articles published in CY 2018. This publication identifies emerging discoveries that may be relevant to the update of the IACC Strategic Plan and other IACC activities. The Committee also continues to monitor Federal activities related to ASD through presentations at meetings of the full IACC; through workshops; and by providing access to meeting webcasts, minutes, transcripts, and materials located on the IACC website. All IACC meetings, including IACC conference calls and IACC-sponsored workshops, are open to the public.
How is membership balanced?*The Interagency Autism Coordinating Committee is composed of 30 appointed members. Currently there are 12 public members and 18 Federal members. Three public members originally appointed have left the committee, leaving vacancies. The public membership is required to include at least two individuals with a diagnosis of Autism Spectrum Disorder (ASD) (the current committee includes two public members who are on the autism spectrum); at least two parents or legal guardians of an individual with ASD (the current committee includes four public members who are parents/guardians of individuals with a diagnosis of ASD); and at least two representatives of leading research, advocacy, and service organizations for individuals with ASD (current committee includes 12 public members who are leaders in advocacy, research and service organizations). The Federal members represent 13 Government agencies that serve individuals with ASD (NIH has 6 members representing different institutes and the Office of the Director).
How frequent & relevant are cmte mtgs?*The full committee held 4 meetings in FY 2019. All IACC meetings were open to the public and also available via videocast and/or a teleconference line. The committee also held other activities including two working group conference calls held on 12/17/18 and 6/20/19 and two workshops held on 5/21/19 and 7/23/19 on topics of interest to the committee. These events were also open to the public.
Why advice can't be obtained elsewhere?*This committee is mandated by the Combating Autism Act of 2006 of the Public Health Service Act, as amended, and was reauthorized by the Autism Collaboration, Accountability, Research, Education and Support (CARES) Act of 2014, and most recently by the Autism CARES Act of 2019. It coordinates efforts concerning autism spectrum disorder among member federal agencies and private autism research, service, and advocacy organizations. The Committee's primary mission is to provide advice to the Secretary of Health and Human Services on matters concerning autism spectrum disorder and to facilitate the efficient and effective exchange of information on autism activities among the member federal agencies in order to enhance coordination of autism-related programs and activities. The Committee, composed of federal officials and public stakeholders, assists in increasing public understanding of the member agencies' activities, programs, policies and research and serves as a public forum for discussions related to autism spectrum disorder. There are U.S. federal advisory committees that are focused on the needs of individuals with disabilities, but there is no other federal advisory committee that is dedicated specifically to the needs of individuals with autism spectrum disorder and that performs functions similar to the IACC.
Why close or partially close meetings?All meetings of the IACC and its subcommittees were open to the public.
Recommendation RemarksThe FY2019 costs for this ACR include the expenses directly related to the managing of the IACC but do not reflect all of the inter-related costs. The change in federal staff support was due to a typo on the FY18 report. In FY18 the federal staff support was 8 FTEs, which is slightly down this year to 7.5 FTEs.

The committee prepared a new Summary of Advances in Autism Spectrum Disorder Research for CY 2018 and a new IACC Strategic Plan for 2018-2019.

Based on the assignment of duties, Dr. Susan Daniels serves as both the designated federal official and the committee decision-maker for this committee.

Dr. Ruth Etzel is no longer with the EPA and therefore stepped down from her position as EPA representative on the committee. Dr. Francis Collins' end date was incorrect on last year's report. This has been corrected to reflect 9/30/19.

Costs: The IACC Committee had 4 meetings and held 2 workshops and 2 working group conference calls. Federal staff were required to attend specific meetings dealing with autism and other issues related to this committee’s function. Other Costs include expenses for printing, meeting facilities, supplies, special mailing, contacts/contractor staff, video conferencing, and other communication costs.

Daily salary costs have been estimated for Federal members of this committee. There were, on average, about 11 federal members attending each meeting. The dollar figure represents a portion of their annual salary. No funds have been transferred between the committee and the agency. No additional funds are paid to Federal employees due to membership on this committee.
Hide Section - PERFORMANCE MEASURES

PERFORMANCE MEASURES

Outcome Improvement To Health Or Safety*YesAction Reorganize Priorities*Yes
Outcome Trust In GovernmentYesAction Reallocate ResourcesYes
Outcome Major Policy ChangesNoAction Issued New RegulationsNo
Outcome Advance In Scientific ResearchYesAction Proposed LegislationNo
Outcome Effective Grant MakingNoAction Approved Grants Or Other PaymentsYes
Outcome Improved Service DeliveryYesAction OtherNo
Outcome Increased Customer SatisfactionYesAction CommentIn response to recommendations, Federal agencies have included consideration of objectives in the IACC Strategic Plan in their programmatic planning effort which has influenced research and policies, though in most cases the Strategic Plan was only one of many factors considered. In some cases, projects such as the funding of specific workshops, were prioritized by agencies largely, but not solely, in response to the IACC Strategic Plan. In addition, in some cases, initiatives were planned in response to IACC recommendations, which has resulted in grants being funded in areas that were not previously covered.
Outcome Implement Laws/Reg RequirementsYesGrants Review*No
Outcome OtherNoNumber Of Grants Reviewed0
Outcome CommentNANumber Of Grants Recommended0
Cost Savings*Unable to DetermineDollar Value Of Grants Recommended$0.00
Cost Savings CommentThe committee's mission is to develop and annually update a strategic plan for the conduct of, and support for ASD research.Grants Review CommentNA
Number Of Recommendations*106Access Contact Designated Fed. Officer*Yes
Number Of Recommendations CommentThe 2016-2017 IACC Strategic Plan for Autism Spectrum Disorder contains 23 research objectives, each of which is a recommendation for a research priority. The plan also contains a budget recommendation. The 2011 IACC Strategic Plan for Autism Spectrum Disorder Research that has now been superseded by the 2016-2017 IACC Strategic Plan contains 78 research objectives, each of which is a recommendation for a research priority. The IACC also sent two advisory letters to the Secretary, DHHS, in 2011 and one advisory letter in 2013 (these letters each contain multiple recommendations, but for simplicity, they will be counted here as one recommendation per letter). In addition, at a meeting of the IACC, the committee recommended research on a particular issue which then was supported through an interagency effort. These 106 recommendations are the total number of recommendations for FY2008 through FY2019.Access Agency WebsiteYes
% of Recs Fully Implemented*43.00%Access Committee WebsiteYes
% of Recs Fully Implemented CommentOf the 106 recommendations (43%) have been fully implemented (including 45 Strategic Plan objectives and 1 research recommendation).Access GSA FACA WebsiteYes
% of Recs Partially Implemented*32.00%Access PublicationsYes
% of Recs Partially Implemented CommentOf the 106 overall recommendations made by the IACC to date, 32% have been partially implemented (including 32 Strategic Plan objectives and 2 letters to the Secretary). Together, 80 of the 106 recommendations (77%) have been either partially or fully implemented.Access OtherNo
Agency Feedback*YesAccess CommentNA
Agency Feedback CommentThe agency provides feedback at the IACC meetings, in reports, in response letters, and on the agency web site.Narrative Description*The Interagency Autism Coordinating Committee (IACC) was established in August 2007 as required by the Combating Autism Act (CAA) of 2006 (P.L. 109-416) to coordinate all efforts within the Department of Health and Human Services (HHS) concerning autism spectrum disorder (ASD). The committee was reauthorized by the Combating Autism Reauthorization Act of 2011 (CARA) (P.L. 112-32), enacted on September 30, 2011 and again by the Autism Collaboration Accountability Research Education and Services (CARES) Act, enacted on August 8, 2014. The Autism Collaboration Accountability Research Education and Services (CARES) Act of 2019 was signed by the President on September 30, 2019, reauthorizing the committee through 2024. The IACC’s charge (under the Autism CARES Act) is to: (1) develop and annually update a summary of advances in ASD research related to causes, prevention, treatment, early screening, diagnosis or ruling out a diagnosis; intervention, and access to services and supports for individuals with ASD across the lifespan of such individuals; (2) monitor autism spectrum disorder research, and to the extent practicable services and support activities, across all relevant Federal departments and agencies, including coordination of Federal activities with respect to autism spectrum disorder; (3) make recommendations to the Secretary regarding any appropriate changes to such activities, including recommendations to the Director of NIH with respect to the strategic plan; (4) make recommendations to the Secretary regarding public participation in decisions relating to ASD; (5) develop a strategic plan for the conduct of, and support for, autism spectrum disorder research, including as practicable for services and supports, for individuals with an autism spectrum disorder across the lifespan of such individuals and the families of such individuals, which shall include—(A) proposed budgetary requirements; and (B) recommendations to ensure that autism spectrum disorder research, and services and support activities to the extent practicable, of the Department of Health and Human Services and of other Federal departments and agencies are not unnecessarily duplicative; and (6) submit to the Congress and the President the annual update of the summary of advances; and (7) the strategic plan and annual updates to the strategic plan.

The IACC successfully finalized their first annual Strategic Plan for ASD Research in January 2009, and issued updated Strategic Plans in 2010 and 2011, which were delivered to Congress, the Secretary, and the Director of NIH. The IACC also issued Strategic Plan Updates in 2012 and 2013 and were delivered to the HHS Secretary and Congress. In October 2017, the IACC issued the 2016-2017 IACC Strategic Plan for Autism Spectrum Disorder, which contains an entirely new set of 23 objectives that describe the top priority areas for autism research and services based on their analysis of research progress and changes in services over the last several years. The IACC Strategic Plan and its subsequent updates have been produced through collaborative effort between the IACC, scientists, advocacy organizations, and the public to identify needs and opportunities for research, services and policy to improve the lives of individuals with autism spectrum disorder and their families. The plan cites specific objectives for different areas of ASD research and services, including diagnosis, biology of ASD, risk factors, treatments, services, lifespan issues, surveillance/infrastructure/workforce/outreach. In April 2019, the IACC issued its annual Summary of Advances in ASD Research, describing the top 20 ASD research advances identified by the committee from research articles published in CY 2018. This publication identifies emerging discoveries that may be relevant to the update of the IACC Strategic Plan and other IACC activities. The Committee also continues to monitor Federal activities related to ASD through presentations at meetings of the full IACC; through workshops; and by providing access to meeting webcasts, minutes, transcripts, and materials located on the IACC website. All IACC meetings, including IACC conference calls and IACC-sponsored workshops, are open to the public.
Hide Section - COSTS

COSTS

Payments to Non-Federal Members*$14,058.00Est Payments to Non-Fed Members Next FY*$14,400.00
Payments to Federal Members*$27,520.00Est. Payments to Fed Members Next FY*$27,520.00
Payments to Federal Staff*$704,970.00Estimated Payments to Federal Staff*$719,069.00
Payments to Consultants*$0.00Est. Payments to Consultants Next FY*$0.00
Travel Reimb. For Non-Federal Members*$36,962.00Est Travel Reimb Non-Fed Members nextFY*$37,701.00
Travel Reimb. For Federal Members*$0.00Est Travel Reimb For Fed Members*$0.00
Travel Reimb. For Federal Staff*$22,894.00Est. Travel Reimb to Fed Staff Next FY*$23,352.00
Travel Reimb. For Consultants*$0.00Est Travel Reimb to Consultants Next FY*$0.00
Other Costs$1,236,986.00Est. Other Costs Next FY*$1,386,328.00
Total Costs$2,043,390.00Est. Total Next FY*$2,208,370.00
Federal Staff Support (FTE)*7.50Est. Fed Staff Support Next FY*7.50
Hide Section - Custom Links

Custom Links

     Committee Level Reports               
Hide Section - MEMBERS,MEETINGS AND ADVISORY REPORTS

MEMBERS,MEETINGS AND ADVISORY REPORTS

To View all the members, meetings and advisory reports for this committee please click here
Hide Section - SUBCOMMITTEES

SUBCOMMITTEES

Committee

Subcommittees

ActionCommittee System IDSubcommittee NameFiscal Year
 COM-032125Subcommittee on Safety2019
Hide Section - CHARTERS AND RELATED DOCS

CHARTERS AND RELATED DOCS

No Documents Found
Hide Section - DATA FROM PREVIOUS YEARS

DATA FROM PREVIOUS YEARS

Committee

Data from Previous Years

 
ActionCommittee System IDCommittee NameFiscal Year
 COM-034626Interagency Autism Coordinating Committee2018
 COM-001956Interagency Autism Coordinating Committee2017
 COM-002337Interagency Autism Coordinating Committee2016
 COM-003796Interagency Autism Coordinating Committee2015
 COM-004702Interagency Autism Coordinating Committee2014
 COM-006274Interagency Autism Coordinating Committee2013
 COM-006568Interagency Autism Coordinating Committee2012
 COM-007996Interagency Autism Coordinating Committee2011
 COM-008698Interagency Autism Coordinating Committee2010
 COM-010248Interagency Autism Coordinating Committee2009
 COM-010714Interagency Autism Coordinating Committee2008
 COM-012218Interagency Autism Coordinating Committee2007