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Committee Detail

Hide Section - GENERAL INFORMATION

GENERAL INFORMATION

Committee NameNational Task Force on Fetal Alcohol Syndrome and Fetal Alcohol EffectAgency NameDepartment of Health and Human Services
Fiscal Year2008Committee Number9491
Original Establishment Date5/24/2000Committee StatusTerminated
Actual Termination Date10/25/2007Committee URLhttp://www.cdc.gov/ncbddd/fas/taskforce.htm
New Committee This FYNoPresidential Appointments*No
Terminated This FYYesMax Number of Members*13
Current Charter Date5/17/2006Designated Fed Officer Position Title*Acting, Executive Secretary
Date Of Renewal Charter5/17/2008Designated Federal Officer PrefixDr.
Projected Termination Date10/25/2007Designated Federal Officer First Name*R. Louise
Exempt From Renewal*NoDesignated Federal Officer Middle Name
Specific Termination AuthoritySection 399J [280f-3]Designated Federal Officer Last Name*Floyd
Establishment Authority*Statutory (Congress Created)Designated Federal Officer SuffixDSN, RN
Specific Establishment Authority*42 USC 241, 399(d) PHS Act 280f (Mandated)Designated Federal Officer Phone*(404) 498-3923
Effective Date Of Authority*5/24/2000Designated Federal Officer Fax*404-498-3550
Committee Type*ContinuingDesignated Federal Officer Email*rlf3@cdc.gov
Presidential*No
Committee Function*Scientific Technical Program Advisory Board
Hide Section - RECOMMENDATION/JUSTIFICATIONS

RECOMMENDATION/JUSTIFICATIONS

Agency Recommendation*Terminate
Legislation to Terminate RequiredYes
Legislation StatusEnacted
How does cmte accomplish its purpose?*The main goals of the Task Force are to advise governmental agencies, academic bodies, and community groups that conduct or support fetal alcohol syndrome and fetal alcohol effect research, programs, and surveillance and to meet the general needs of populations actually or potentially impacted by FAS and FAE. In the final year of the Task Force, approvals from Task Force members were obtained on the document, “Reducing Alcohol-exposed Pregnancies.” Minor editorial revisions were also made to each of the Task Force documents and appropriate agency clearances are being obtained prior to submission to the HHS Secretary. Task Force deliberations in FY 2008 included the October 24, 2007 conference call that took place to undergo final deliberations and approvals of both Task Force reports along with discussion of dissemination strategies for these products.
How is membership balanced?*The Task Force is comprised of 13 members including the Chair selected and appointed by the Secretary of the Department of Health and Human Services, from authorities knowledgeable in the field of Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Effect (FAE) and includes clinicians, researchers, parents or legal guardians of individuals with FAS/FAE, federal agencies representatives, state program directors, and state representatives, and educators, and representatives from advocacy and research organizations that brings together a broad spectrum of individuals who are involved with and affected by FAS/FAE to consider issues and develop a more comprehensive view of what is needed. The Chairperson of the Interagency Coordinating Committee on Fetal Alcohol Syndrome of the Department of Health and Human Services was mandated to serve as a standing member to coordinate its efforts with the Task Force. The task force also includes seven liaison representatives from the following organizations: American Academy of Pediatrics; American Academy of Family Physicians; American College of Obstetrics and Gynecology; March of Dimes; National Organization on Fetal Alcohol Syndrome; The Arc of the United States; and the Center for Science in the Public Interest. Members are appointed to serve for overlapping terms of up to four years and emphasis is placed on equitable geographic location, racial/ethnic background, gender, minority and female representation, and areas of expertise.
How frequent & relevant are cmte mtgs?*The Task Force met one time via conference call in FY 2008 since the committee terminated on October 25, 2007. The Executive Secretary, Designated Federal Official, and writing group members continue to communicate via email regarding agency clearance processes and preparation of final reports for submission to the HHS Secretary. A Task Force listserv is available for discussions among Task Force members on particular topics or to alert members of new information, upcoming events, or special requests.
Why advice can't be obtained elsewhere?*The Secretary is mandated under Section 399H of the Public Health Service Act, as amended (42 U.S.C. Section 280f), as amended by Public Law 105-392), to establish a National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect: (1) to foster coordination among all governmental agencies, academic bodies, and community groups that conduct or support fetal alcohol syndrome and fetal alcohol effect research, programs, and surveillance; and, (2) to otherwise meet the general needs of populations actually or potentially impacted by fetal alcohol syndrome (FAS) and fetal alcohol effect (FAE). The National Task Force includes clinicians, researchers, parents or legal guardians of individuals with FAS and FAE, federal agencies representatives, state program directors, and educators, and representatives from advocacy and research organizations that brings together a broad spectrum of individuals who are involved with and affected by FAS/FAE to consider issues and develop a more comprehensive view of what is needed. The Interagency Coordinating Committee on Fetal Alcohol Syndrome of the Department of Health and Human Services consists of Federal agencies only and is focused on interagency collaboration and elimination of duplication.Through its mandate, the Task Force works to 1) develop strategies to disseminate recommendations at Federal, State, and local levels; 2) partners with governmental and non-governmental agencies to adopt recommendations; and 3) assists agencies in their ongoing efforts to implement the recommendations. Implementation of these recommendations fulfill the mandate of the Task Force and result in enhanced programs and research concerning the effectiveness of public health messages about drinking during pregnancy, to increase the knowledge and skills of health and social service providers in recognizing and intervening with women at risk for an alcohol-exposed pregnancy, to support and develop effective strategies for preventing and treating FAS and FAE, and to assure that efforts across agencies and organizations are coordinated and comprehensive. This mandate is not served by any existing Task Force or Committee.
Why close or partially close meetings?The Task Force did not have any closed meetings during FY 2008. All meetings of the National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect are open to the public.
Recommendation RemarksIn October 2007, the CDC Fetal Alcohol Syndrome Prevention Team received a Congressional request to outline the contributions of the National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect since its inception in 2000. The request, from Senate Report 110-107, is as follows: Senate--Fetal Alcohol Spectrum Disorders- The Committee is concerned by the prevalence of fetal alcohol spectrum disorders [FASD] in the United States and notes that drinking during pregnancy is the Nation's leading known preventable cause of mental retardation and birth defects. To publicize and promote awareness of this critical public health information, the Committee has provided sufficient resources to continue these activities. The Committee notes that the National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect is due to expire in October 2007. The Committee requests that the CDC submit a progress report within six months on the Task Force's contributions to preventing and reducing fetal alcohol spectrum disorders. The report should outline future plans for the Task Force, including programmatic and funding priorities.

A Report to Congress entitled, Preventing and Reducing Fetal Alcohol Spectrum Disorders, was signed by the Director of CDC in August 2008 and forwarded to HHS. This report highlights CDC’s FASD-related prevention activities and future priorities (a separate Congressional request made in the House) in addition to describing the goals and accomplishments of the National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect.

Part O, Section 399H(d)(1) of the Public Health Service Act (42 U.S.C. Section 280f-3) directs the establishment of the National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect. This legislation also includes a Sunset Provision (Section 399K) that reads “this part shall not apply on the date that is 7 years after the date on which all members of the National Task Force have been appointed under section 399H(d)(1).”

The initial appointments took effect October 24, 2000, therefore, the committee officially terminated October 25, 2007.
Hide Section - PERFORMANCE MEASURES

PERFORMANCE MEASURES

Outcome Improvement To Health Or Safety*YesAction Reorganize Priorities*Yes
Outcome Trust In GovernmentNoAction Reallocate ResourcesNo
Outcome Major Policy ChangesNoAction Issued New RegulationsNo
Outcome Advance In Scientific ResearchYesAction Proposed LegislationNo
Outcome Effective Grant MakingYesAction Approved Grants Or Other PaymentsNo
Outcome Improved Service DeliveryYesAction OtherNo
Outcome Increased Customer SatisfactionYesAction CommentNA
Outcome Implement Laws/Reg RequirementsNoGrants Review*No
Outcome OtherNoNumber Of Grants Reviewed0
Outcome CommentNANumber Of Grants Recommended0
Cost Savings*Unable to DetermineDollar Value Of Grants Recommended$0.00
Cost Savings CommentNAGrants Review CommentNA
Number Of Recommendations*16Access Contact Designated Fed. Officer*Yes
Number Of Recommendations Comment1. To recommend approval with revisions to the document, Reducing alcohol-exposed pregnancies (10/24/2007). Report is currently being prepared for submission to HHS. Completed.2. To recommend approval with revisions to the document, A Call to Action: Advancing Essential Services and Research on Fetal Alcohol Spectrum Disorders (FASDs). (09/12/07). Report is currently being prepared for submission to HHS. Completed.3. Recommend that Task Force representatives attend the FASD Leadership Institute to be convened by the Marcus Institute in October 2007. (02/13/07). Several Task Force members attended and participated in this meeting, October 22-24, 2007. The Call to Action document and recommendations were presented and discussed. Completed. 4. To endorse the work of the Post-Exposure Working Group and the document put before the Task Force during the February 2007 meeting for further work, development, discussion, and finalization. (02/13/07). Completed.5. To recommend that CDC provide a “Community Guide” approach for prevention interventions for FASD and that they have input into this process. (02/17/06). Based on the evidence presented by RTI, the Task Force decided not to proceed in using the Community Guide approach to systematically review the evidence of FASD studies since prevention studies at this time are limited. The Task Force did decide to prepare a report reviewing the evidence to date and to develop recommendations based on these. Completed.6. To convene an adhoc working group to discuss how to advise the Secretary and/or other appropriate entities on the promotion of a productive research agenda on FASDs (09/27/06). A smaller group from the Post-Exposure working group prepared the Call to Action document which was approved with revisions by the Task Force on 09/12/07). Completed.7. To direct CDC to investigate the feasibility of convening a meeting of appropriate stakeholders and clinicians involved in the diagnosis and treatment of individuals with FASDs to begin the process of formulating diagnostic criteria or guidelines for alcohol-related neurodevelopmental disorders. (09/27/06). Initial plans to coordinate such a meeting have begun with involvement from CDC and NIAAA. Completed.8. To explore how the Task Force can commend the Subsance Abuse and Mental Health Services Administration (SAMHSA) FASD Center for Excellence on their work and express concern regarding the discontinuation of Center activities. (09/27/06). SAMHSA Center was refunded; no Task Force action taken. Not completed.9. To approve a letter to the Department of Education requesting that FAS be included in the list of conditions in the administrative regulations based on the reauthorization of the Individuals with Disabilities Education Act (IDEA) regulations. (08/22/05). Completed.10. To recommend that a letter be sent from the Task Force endorsing the American Psychiatric Association’s consideration on including FAS in the Diagnostic and Statistical Manual of Mental Disorders (DSM). (06/16/05). Not completed; tabled until the next revision of DSM in 2011.11. To recommend that the Surgeon General reissue the advisory on alcohol use in pregnancy -- a motion to request this reissuance of the advisory was made in April 2001. The advisory was reviewed and approved by the Task Force and received key federal agency support. The Surgeon General’s Advisory on Alcohol Use in Pregnancy was released in February 2005. Completed.12. To recommend that FAS be included in the reauthorization of IDEA under “other health impairments.” (12/9/04). Completed.13. To recommend that teachers complete a course on FAS as part of their teacher certification. (12/9/04). One federal agency funded a project to develop a program and curriculum to address this issue. Partially completed.14. To endorse the definition of Fetal Alcohol Spectrum Disorders (FASD) developed and approved by the Summit convened by the National Organization on FAS. (6/17/04). Completed.15. To approve the Fetal Alcohol Syndrome Guidelines for Referral and Diagnosis Report. (5/13/04). Completed.16. To recommend that the Center for Science in the Public Interest (CSPI) drafted a letter on behalf of the Task Force to support the CSPI’s petition to revise the design specifications for alcoholic beverage warning labels. The CSPI liaison to the Task Force also recommended communication by the DHHS Secretary to the Treasury Secretary about this labeling issue. (09/20/02). The letter was drafted; however, it was later determined that this issue was no longer a priority at the agency directing these efforts. Partially completed.Access Agency WebsiteYes
% of Recs Fully Implemented*75.00%Access Committee WebsiteYes
% of Recs Fully Implemented CommentNAAccess GSA FACA WebsiteYes
% of Recs Partially Implemented*13.00%Access PublicationsNo
% of Recs Partially Implemented CommentNAAccess OtherNo
Agency Feedback*YesAccess CommentThe meetings, minutes, Charter, membership roster, and mission of the National Task Force on Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Effect (FAE) can be accessed through CDC’s National Center on Birth Defects and Developmental Disabilities web site. A web page for the Task Force has been designed to keep the membership, advocacy and research organizations, parents or legal guardians of individuals with FAS and FAE, the general public, and other Federal agencies abreast of ongoing activities.
Agency Feedback CommentThe Task Force is provided with frequent communication at full committee meetings, working group meetings, conference calls, and/or e-mails, to address pending action items and to discuss works in progress and issues that may arise between meetings. A Task Force listserv is available for discussions among Task Force members on particular topics or to alert members of new information, upcoming events, or special requests. CDC’s National Center on Birth Defects and Developmental Disabilities; the Interagency Coordinating Committee on Fetal Alcohol Syndrome of the Department of Health and Human Services, and other federal agencies provide formal presentations and updates during Task Force meetings to keep the membership abreast of ongoing activities at the federal level.Narrative Description*The Secretary is mandated under Section 399H of the Public Health Service Act, as amended (42 U.S.C. Section 280f, as added by Public Law 105-392), to establish the National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect. The Task Force (a) advises federal, state, and local programs and research concerning fetal alcohol syndrome (FAS) and fetal alcohol effect (FAE), including programs and research concerning education and public awareness for relevant service providers, school-age children, women at risk, and the general public medical diagnosis, interventions for women at risk of giving birth to children with FAS and FAE, and beneficial services for individuals with FAS and FAE and their families; (b) coordinate its efforts with the Interagency Coordinating Committee on Fetal Alcohol Syndrome of the Department of Health and Human Services; and (c) report, on a biennial basis, to the Secretary and relevant committees of Congress on the current and planned activities of the participating agencies. Since its inception, this Task Force has worked to identify priorities and put forth recommendations in the areas of FAS diagnosis, prevention, and service provision (for both women at risk for an alcohol-exposed pregnancy and children and families affected). This Task Force also promotes interagency and liaison member information sharing and collaboration in its efforts.The Task Force completed its final year in 2007, terminating on October 25, 2007. Current activities are focused on the finalization of two important Task Force products. The first is entitled, “Reducing Alcohol-exposed Pregnancies” and it is a report that describes evidence-based strategies to reduce alcohol misuse and alcohol-exposed pregnancies. This report puts forth recommendations to support the development, implementation, and expansion of evidence-based strategies to prevent alcohol-exposed pregnancies; to stress the importance of alcohol screening and provider education; and to promote further research on how best to intervene with women at greatest risk for alcohol-exposed pregnancies. The Task Force also puts forward several topics for consideration as future research directions in the FASD prevention arena. The prevention report was reviewed and approved by the Task Force on October 24, 2007. Additionally, the Task Force reviewed and approved another important report, entitled “A Call to Action: Advancing Essential Services and Research on Fetal Alcohol Spectrum Disorders,” which highlights recommendations to improve and expand efforts regarding early identification, diagnostic services, and quality research on interventions for individuals with FASDs and their families. Both of these reports are currently being prepared for submission to the HHS Secretary. Once vetted, these documents will be disseminated to relevant stakeholders including researchers, clinicians, decisionmakers, state and local health and social service entities, professional organizations, and caregivers interested in FASD prevention and interventions for children and families affected by FASDs.
Hide Section - COSTS

COSTS

Payments to Non-Federal Members*$3,000.00Est Payments to Non-Fed Members Next FY*$0.00
Payments to Federal Members*$0.00Est. Payments to Fed Members Next FY*$0.00
Payments to Federal Staff*$66,988.00Estimated Payments to Federal Staff*$0.00
Payments to Consultants*$0.00Est. Payments to Consultants Next FY*$0.00
Travel Reimb. For Non-Federal Members*$0.00Est Travel Reimb Non-Fed Members nextFY*$0.00
Travel Reimb. For Federal Members*$0.00Est Travel Reimb For Fed Members*$0.00
Travel Reimb. For Federal Staff*$0.00Est. Travel Reimb to Fed Staff Next FY*$0.00
Travel Reimb. For Consultants*$0.00Est Travel Reimb to Consultants Next FY*$0.00
Other Costs$3,500.00Est. Other Costs Next FY*$0.00
Total Costs$73,488.00Est. Total Next FY*$0.00
Federal Staff Support (FTE)*0.55Est. Fed Staff Support Next FY*0.00
Hide Section - Custom Links

Custom Links

     Committee Level Reports               
Hide Section - MEMBERS,MEETINGS AND ADVISORY REPORTS

MEMBERS,MEETINGS AND ADVISORY REPORTS

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Hide Section - CHARTERS AND RELATED DOCS

CHARTERS AND RELATED DOCS

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Hide Section - DATA FROM PREVIOUS YEARS

DATA FROM PREVIOUS YEARS

Committee

Data from Previous Years

 
ActionCommittee System IDCommittee NameFiscal Year
 COM-012202National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect2007
 COM-012573National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect2006
 COM-014028National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect2005
 COM-014431National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect2004
 COM-016027National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect2003
 COM-016788National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect2002
 COM-017663National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect2001
 COM-018528National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect2000