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HHS - 1003 - President's Committee for People with Intellectual Disabilities - Presidential

GENERAL INFORMATION

Committee Name	President's Committee for People with Intellectual Disabilities	Agency Name	Department of Health and Human Services
Fiscal Year	2025	Committee Number	1003
Original Establishment Date	5/11/1966	Committee Status	Chartered
Actual Termination Date		Committee URL	https://www.acl.gov/programs/empowering-advocac...
Actual Merged Date		Presidential Appointments*	Yes
New Committee This FY	No	Max Number of Members*	34
Terminated This FY	No	Designated Fed Officer Position Title*	Acting Commissioner
Merged This FY		Designated Federal Officer Prefix	Ms.
Current Charter Date	5/30/2024	Designated Federal Officer First Name*	Jennifer
Date Of Renewal Charter	5/30/2026	Designated Federal Officer Middle Name
Projected Termination Date		Designated Federal Officer Last Name*	Johnson
Exempt From Renewal*	No	Designated Federal Officer Suffix
Specific Termination Authority	EO 13811	Designated Federal Officer Phone*	(202) 795-7371
Establishment Authority*	Presidential	Designated Federal Officer Fax*
Specific Establishment Authority*	EO 12994, Amended by EOs 13309, 13446 and Continued by EO 14109	Designated Federal Officer Email*	jennifer.johnson@acl.hhs.gov
Effective Date Of Authority*	9/30/2017
Exempt From EO 13875 Discretionary Cmte	Not Applicable
Committee Type*	Continuing
Presidential*	Yes
Committee Function*	National Policy Issue Advisory Board

RECOMMENDATION/JUSTIFICATIONS

Agency Recommendation*	Continue
Legislation to Terminate Required	Not Applicable
Legislation Status	Not Applicable
How does cmte accomplish its purpose?*	The President's Committee for People with Intellectual Disabilities (PCPID) convenes meetings to explore ways to provide and improve services and support to citizens with intellectual disabilities and their families. The Committee, then, makes recommendations through an annual report to the President of the United States.
How is membership balanced?*	PCPID is composed of 21 citizen members (capacity) appointed by the President and 13 ex officio members representing various Federal agencies. Citizen members include self-advocates, parents, professionals, and volunteers in the field of intellectual disabilities. Ex officio members include the U.S. Attorney General, the Secretary of the Interior, the Secretary of Commerce, the Secretary of Labor, the Secretary of Health and Human Services, the Secretary of Housing and Urban Development, the Secretary of Transportation, the Secretary of Education, the Secretary of Homeland Security, the Chief Executive Officer of the Corporation for National and Community Services, the Commissioner of the Social Security Administration, the Chair of the Equal Employment Opportunity Commission, and the Chair of the National Council on Disability.
How frequent & relevant are cmte mtgs?*	PCPID (full committee) traditionally meets two times a year. These meetings are held either in fully virtual or hybrid format (in person and virtual). Each meeting serves as a step in the formation of the PCPID Report to the President.
Why advice can't be obtained elsewhere?*	PCPID is the only governmental committee dedicated solely to people with intellectual disabilities. The combination of perspectives on the Committee is an invaluable source for providing sound policy recommendations to the President.
Why close or partially close meetings?	All PCPID Meetings are open to the public.
Recommendation Remarks	RECOMMENDATION FROM 2024 PCPID REPORT TO THE PRESIDENT. The 2024 PCPID Report to the President titled Advancing Independence and Community Integration for All: Supporting Individuals with Intellectual Disabilities Through Home and Community Based Services. The report was broken out into four focus areas that included recommendations. A high level overview of the recommendations is the following: Direct Support Professionals Recommendations: Develop career pathways, improve wages, and provide better training and support for DSPs. Employment Recommendations: Increase funding for job support programs, promote competitive integrated employment, and encourage entrepreneurship among people with I/DD. Community Living Recommendations: Expand housing options, improve safety protocols, and increase access to assistive technology and transportation services. Federal Support Programs Recommendations: Increase asset limits for Supplemental Security Income, eliminate waiting periods for Medicare, and improve the flexibility of Medicaid benefits across states. ***September 26th and 27th PCPID meeting minutes (two documents) have been uploaded as files due to steps still being made to verify the minutes are 508 compliant before posting on the ACL website. We were not able to share a website link at this time, but will be posted on website over the next few weeks.

PERFORMANCE MEASURES

Outcome Improvement To Health Or Safety*	Yes	Action Reorganize Priorities*	Yes
Outcome Trust In Government	Yes	Action Reallocate Resources	No
Outcome Major Policy Changes	No	Action Issued New Regulations	No
Outcome Advance In Scientific Research	No	Action Proposed Legislation	No
Outcome Effective Grant Making	No	Action Approved Grants Or Other Payments	No
Outcome Improved Service Delivery	No	Action Other	No
Outcome Increased Customer Satisfaction	No	Action Comment	The President's Committee for People with Intellectual Disabilities is an advisory committee to the President and the HHS Secretary through the Administration for Community Living (ACL), Administration on Disabilities (AoD).
Outcome Implement Laws/Reg Requirements	No	Grants Review*	No
Outcome Other	No	Number Of Grants Reviewed	0
Outcome Comment	The President's Committee for People with Intellectual Disabilities does not administer any programs or grants and does not have the authority to implement policy changes. Its function is solely to supply the President with recommendations.	Number Of Grants Recommended	0
Cost Savings*	None	Dollar Value Of Grants Recommended	$0.00
Cost Savings Comment	The President's Committee for People with Intellectual Disabilities is an advisory committee that does not administer any programs. PCPID is currently part of the Administration for Community Living (ACL), Administration on Disabilities (AoD).	Grants Review Comment	The Committee is NOT engaged in the review of applications for grants.
Number Of Recommendations*	1,371	Access Contact Designated Fed. Officer*	Yes
Number Of Recommendations Comment	The approximate number of recommendations issued by PCPID during the lifespan of the Committee is 1,371. These recommendations were made through Annual Reports to the President issued between 1966 to 2024.	Access Agency Website	Yes
% of Recs Fully Implemented*	28.00%	Access Committee Website	Yes
% of Recs Fully Implemented Comment	This information is based on the PCPID staff research.	Access GSA FACA Website	Yes
% of Recs Partially Implemented*	27.00%	Access Publications	Yes
% of Recs Partially Implemented Comment	This information is based on the PCPID staff research.	Access Other	No
Agency Feedback*	Yes	Access Comment	N/A
Agency Feedback Comment*	The FRN is published 30 days in advanced to inform the public of each committee meeting being held with information on how to register to observe proceedings. Members of the public have an opportunity to provide input to PCPID through a comment box developed on PCPID website and some are then asked to read their statements during committee meetings.	Narrative Description*	Executive Order 12994, as amended by Executive Orders 13309 and 13446, provides the authority for the President’s Committee for People with Intellectual Disabilities (PCPID). PCPID was continued by Executive Order 14109, issued on September 29, 2023 by President Biden.

COSTS

1. Payments to Non-Federal Members*		1. Est Paymnts to Non-Fed Membrs Nxt FY*
2. Payments to Federal Members*		2. Est. Payments to Fed Members Next FY*
3. Payments to Federal Staff*		3. Estimated Payments to Federal Staff*
4. Payments to Consultants*		4. Est. Payments to Consultants Next FY*
5. Travel Reimb. For Non-Federal Membrs*		5. Est Travel Reimb Non-Fed Membr nxtFY*
6. Travel Reimb. For Federal Members*		6. Est Travel Reimb For Fed Members*
7. Travel Reimb. For Federal Staff*		7. Est. Travel Reimb to Fed Staf Nxt FY*
8. Travel Reimb. For Consultants*		8. Est Travel Reimb to Consltnts Nxt FY*
10. Other Costs		10. Est. Other Costs Next FY*
11. Total Costs	$0.00	11. Est. Total Next FY*	$0.00
Date Cost Last Modified	3/14/2025 9:19 AM	Est. Fed Staff Support Next FY*
Federal Staff Support (FTE)*		Est Cost Remarks
Cost Remarks

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