FACACLASSIC

Note: An Annual Comprehensive Review, as required by §7 of the Federal Advisory Committee Act, is conducted each year on committee data entered for the previous fiscal year (referred to as the reporting year). The data for the reporting year is not considered verified until this review is complete and the data is moved to history for an agency/department. See the Data From Previous Years section at the bottom of this page for the committee’s historical, verified data.

Details on agency responses to committee recommendations can be found under the Performance Measures section for each committee in the fields “Agency Feedback” and “Agency Feedback Comment.”

HHS - 5248 - National Cancer Institute Council of Research Advocates - Authorized by Law

GENERAL INFORMATION

Committee Name	National Cancer Institute Council of Research Advocates	Agency Name	Department of Health and Human Services
Fiscal Year	2025	Committee Number	5248
Original Establishment Date	8/17/1998	Committee Status	Chartered
Actual Termination Date		Committee URL
Actual Merged Date		Presidential Appointments*	No
New Committee This FY	No	Max Number of Members*	16
Terminated This FY	No	Designated Fed Officer Position Title*	ACTING DIRECTOR, OFFICE OF ADVOCACY RELATIONS
Merged This FY		Designated Federal Officer Prefix
Current Charter Date	8/17/2024	Designated Federal Officer First Name*	AMY
Date Of Renewal Charter	8/17/2026	Designated Federal Officer Middle Name
Projected Termination Date	3/31/2025	Designated Federal Officer Last Name*	MILLER
Exempt From Renewal*	No	Designated Federal Officer Suffix
Specific Termination Authority		Designated Federal Officer Phone*	240-781-3406
Establishment Authority*	Authorized by Law	Designated Federal Officer Fax*	240-541-4517
Specific Establishment Authority*	42 U.S.C. 285a-2(b)(7)	Designated Federal Officer Email*	amy.williams@nih.gov
Effective Date Of Authority*	11/20/1985
Exempt From EO 13875 Discretionary Cmte	Not Applicable
Committee Type*
Presidential*	No
Committee Function*	Non Scientific Program Advisory Board

RECOMMENDATION/JUSTIFICATIONS

Agency Recommendation*	Terminate
Legislation to Terminate Required	Not Applicable
Legislation Status	Not Applicable
How does cmte accomplish its purpose?*	The role the National Cancer Institute’s Council of Research Advocates (NCRA) was to identify and respond to issues and challenges facing the Institute and the cancer research community, at the request of the NCI Director. Board members contributed non-scientific perspectives to advance patient-focused research, including identifying new approaches, fostering innovation, addressing risks, and strengthening collaborations with non-scientist stakeholders. In FY2025, NCRA held no meetings due to the committee’s termination.
How is membership balanced?*	The Committee consisted of up to 16 members, including a Chair appointed by the NCI Director. Members were cancer research advocates with direct experience in the cancer community and an expert understanding of the non-scientific burdens of cancer research, as well as the perspectives of patients, researchers, policymakers, and advocates. This expertise was gained through work in cancer advocacy, affiliation with professional societies or research foundations, experience as healthcare professionals focused on cancer and related diseases, or service as thought leaders in cancer research and care delivery.
How frequent & relevant are cmte mtgs?*	In FY2025, NCRA held no meetings following the committee’s termination.
Why advice can't be obtained elsewhere?*	Membership consisted of cancer research advocates with expertise in non-scientific burdens to research and in the perspectives of patients, researchers, policymakers, and advocates involved in cancer research and care delivery.
Why close or partially close meetings?	N/A
Recommendation Remarks	Per the 2025 Secretary Directive, this FACA Committee has been terminated and no longer maintains a website. Reports: The committee did not produce any public reports. Max Number of Members Total: The Charter authorized up to 16 members, including the Chair. At the time of termination, the committee had 13 SGEs. Members: Member term end dates differ from those reported in the FY2024 ACR due to the committee’s termination. Two members were on-boarded in FY2025 [Katie Coleman and Amanda Haddock]. DFO/Committee Decision Maker: These roles are held by the same individual based on the Institute’s assignment of responsibilities.

PERFORMANCE MEASURES

Outcome Improvement To Health Or Safety*	No	Action Reorganize Priorities*	No
Outcome Trust In Government	Yes	Action Reallocate Resources	No
Outcome Major Policy Changes	No	Action Issued New Regulations	No
Outcome Advance In Scientific Research	No	Action Proposed Legislation	No
Outcome Effective Grant Making	No	Action Approved Grants Or Other Payments	No
Outcome Improved Service Delivery	No	Action Other	No
Outcome Increased Customer Satisfaction	Yes	Action Comment	N/A
Outcome Implement Laws/Reg Requirements	No	Grants Review*	No
Outcome Other		Number Of Grants Reviewed	0
Outcome Comment	N/A	Number Of Grants Recommended	0
Cost Savings*	None	Dollar Value Of Grants Recommended	$0.00
Cost Savings Comment	N/A	Grants Review Comment	N/A
Number Of Recommendations*	104	Access Contact Designated Fed. Officer*	Yes
Number Of Recommendations Comment	In FY2025, NCRA made no general recommendations.	Access Agency Website	No
% of Recs Fully Implemented*	40.00%	Access Committee Website	No
% of Recs Fully Implemented Comment	N/A	Access GSA FACA Website	Yes
% of Recs Partially Implemented*	0.00%	Access Publications	Yes
% of Recs Partially Implemented Comment	N/A	Access Other	Yes
Agency Feedback*	Yes	Access Comment	Information on the NCRA was available on the NCI Division of Extramural Activities website (http://deainfo.nci.nih.gov/advisory/ncra/ncra.htm), which included each committee’s charter, minutes, agenda, roster, future meeting dates, presentations, and reports. NCRA meetings were also accessible to the public, live and on demand, via the NIH Videocast (http://videocast.nih.gov/).
Agency Feedback Comment*	E-mail updates and presentations at the meetings. NCI leadership gave feedback directly to the NCRA through meetings with the full advisory group. The NCI community was made aware of NCRA activities through NCI’s Office of Advocacy Relations. Information was provided to the public at each meeting. The public was able to view information related to the Committee through the NCRA’s official website.	Narrative Description*	The NCI coordinates the National Cancer Program, supporting research, training, information dissemination, and programs addressing the causes, diagnosis, prevention, treatment, rehabilitation, and continuing care of cancer and its impact on patients and families. The NCI Council of Research Advocates (NCRA) was the only NCI federal advisory committee composed entirely of advocate leaders. Members were selected for their expertise on issues critical to the cancer research community. NCRA advised the NCI Director by identifying challenges, enhancing community input, optimizing outreach, and promoting collaborations to improve research outcomes. Members also contributed unique perspectives by proposing new approaches, fostering innovation, addressing risks and barriers, and anticipating unintended consequences of NCI decisions.

COSTS

1. Payments to Non-Federal Members*	$0.00	1. Est Paymnts to Non-Fed Membrs Nxt FY*	$0.00
2. Payments to Federal Members*	$0.00	2. Est. Payments to Fed Members Next FY*	$0.00
3. Payments to Federal Staff*	$0.00	3. Estimated Payments to Federal Staff*	$0.00
4. Payments to Consultants*	$0.00	4. Est. Payments to Consultants Next FY*	$0.00
5. Travel Reimb. For Non-Federal Membrs*	$0.00	5. Est Travel Reimb Non-Fed Membr nxtFY*	$0.00
6. Travel Reimb. For Federal Members*	$0.00	6. Est Travel Reimb For Fed Members*	$0.00
7. Travel Reimb. For Federal Staff*	$0.00	7. Est. Travel Reimb to Fed Staf Nxt FY*	$0.00
8. Travel Reimb. For Consultants*	$0.00	8. Est Travel Reimb to Consltnts Nxt FY*	$0.00
10. Other Costs	$0.00	10. Est. Other Costs Next FY*	$0.00
11. Total Costs	$0.00	11. Est. Total Next FY*	$0.00
Date Cost Last Modified	5/30/2025 1:09 PM	Est. Fed Staff Support Next FY*	0.00
Federal Staff Support (FTE)*	0.00	Est Cost Remarks	Per the 2025 Secretary Directive, this FACA Committee has been terminated.
Cost Remarks	In FY2025, the Committee held no meetings and therefore incurred no costs to report.

Interest Areas

Category Area Health Treatment Medicine Diseases Health and Health Research

Custom Links

Committee Level Reports