FACACLASSIC

Note: An Annual Comprehensive Review, as required by §7 of the Federal Advisory Committee Act, is conducted each year on committee data entered for the previous fiscal year (referred to as the reporting year). The data for the reporting year is not considered verified until this review is complete and the data is moved to history for an agency/department. See the Data From Previous Years section at the bottom of this page for the committee’s historical, verified data.

Details on agency responses to committee recommendations can be found under the Performance Measures section for each committee in the fields “Agency Feedback” and “Agency Feedback Comment.”

HHS - 73636 - Advisory Committee on Breast Cancer in Young Women - Statutory (Congress Created)

GENERAL INFORMATION

Committee Name	Advisory Committee on Breast Cancer in Young Women	Agency Name	Department of Health and Human Services
Fiscal Year	2025	Committee Number	73636
Original Establishment Date	6/17/2010	Committee Status	Chartered
Actual Termination Date		Committee URL	https://www.cdc.gov/breast-cancer/php/advisory-...
Actual Merged Date		Presidential Appointments*	No
New Committee This FY	No	Max Number of Members*	38
Terminated This FY	No	Designated Fed Officer Position Title*	Public Health Analyst
Merged This FY		Designated Federal Officer Prefix
Current Charter Date	6/22/2024	Designated Federal Officer First Name*	Kimberly
Date Of Renewal Charter	6/22/2026	Designated Federal Officer Middle Name	E.
Projected Termination Date		Designated Federal Officer Last Name*	Smith
Exempt From Renewal*	No	Designated Federal Officer Suffix
Specific Termination Authority		Designated Federal Officer Phone*	(404) 498-0073
Establishment Authority*	Statutory (Congress Created)	Designated Federal Officer Fax*	(770) 488-4760
Specific Establishment Authority*	Section 399NN of the of the Public Health Service Act	Designated Federal Officer Email*	hro2@cdc.gov
Effective Date Of Authority*	3/23/2010
Exempt From EO 13875 Discretionary Cmte	Not Applicable
Committee Type*	Continuing
Presidential*	No
Committee Function*	Other Committee

RECOMMENDATION/JUSTIFICATIONS

Agency Recommendation*	Continue
Legislation to Terminate Required	Not Applicable
Legislation Status	Not Applicable
How does cmte accomplish its purpose?*	The committee is authorized to recommend evidence-based initiatives for the purposes of advancing understanding and awareness of breast cancer among young women (particularly those at heightened risk for developing breast cancer); to establish and conduct public and health care professional education activities; to conduct prevention research; and to support the dissemination of evidence-based age appropriate messages and materials.
How is membership balanced?*	Membership includes expertise in the fields of breast cancer, prevention, early detection, diagnosis, public health, social marketing, genetic testing and counseling, treatment, rehabilitation, palliative care, and survivorship or in related disciplines with a specific focus on young women. The committee also includes ex-officio representatives from the National Cancer Institute; Department of Defense; Indian Health Service; Agency for Healthcare Research and Quality; Health Resources and Services Administration; and the US Department of Health and Human Services, Office of Women's Health. The committee has three ethnic/racial minority representatives and thirteen females
How frequent & relevant are cmte mtgs?*	Meetings are held one to two times per year, which are relevant to items outlined in the committee's charter. This includes establishing and conducting public and health care professional education activities, conducting prevention research, and supporting the dissemination of evidence-based age appropriate messages and materials. However, if the need arises, the committee will convene a meeting to meet the needs of the committee/agency.
Why advice can't be obtained elsewhere?*	The Advisory Committee on Breast Cancer in Young Women shall provide advice and guidance to the Secretary, HHS, the Assistant Secretary for Health, and the Director, CDC, regarding the formative research, development, implementation and evaluation of evidence-based activities designed to prevent breast cancer and promote the early detection and support of young women who develop the disease. The advice provided by the Committee will assist in ensuring scientific quality, timeliness, utility, and dissemination of credible appropriate messages and resource materials.
Why close or partially close meetings?	N/A
Recommendation Remarks	This committee does not generate formal reports. The committee did not meet in FY25. No recommendations were made in FY25. Committee Members with terms that ended 11/30/2024 served within their additional 180 days: Cristina M. Checka (1/05/25), Jana Halaby (1/05/25), Heather Caro (1/05/25), Michael A. Howard (1/07/25), Melissa A. Peters (1/05/25) Leigh Hurst (1/05/25). One Ex-Officio Bethany Applebaum of HRSA was released (6/01/25). One Liaison Representative Organization- Bright Pink, was removed per a charter amendment in FY25

PERFORMANCE MEASURES

Outcome Improvement To Health Or Safety*	Yes	Action Reorganize Priorities*	No
Outcome Trust In Government	No	Action Reallocate Resources	No
Outcome Major Policy Changes	No	Action Issued New Regulations	No
Outcome Advance In Scientific Research	Yes	Action Proposed Legislation	No
Outcome Effective Grant Making	No	Action Approved Grants Or Other Payments	No
Outcome Improved Service Delivery	No	Action Other	Yes
Outcome Increased Customer Satisfaction	No	Action Comment	CDC launched and completed formative research regarding the national public education campaign targeting young women and health care providers about early onset breast cancer and general breast health among young women. The public education campaign was also launched in May 2015 and is ongoing. Information can be found at www.cdc.gov/bringyourbrave.
Outcome Implement Laws/Reg Requirements	No	Grants Review*	No
Outcome Other	No	Number Of Grants Reviewed	0
Outcome Comment	N/A	Number Of Grants Recommended	0
Cost Savings*	None	Dollar Value Of Grants Recommended	$0.00
Cost Savings Comment	Not Applicable	Grants Review Comment	N/A
Number Of Recommendations*	26	Access Contact Designated Fed. Officer*	Yes
Number Of Recommendations Comment	No formal recommendations were made in FY25. There were 14 formal recommendations in FY21. There were 9 formal recommendations in FY15 and 3 formal recommendations in FY14 for a total of 26 recommendations for the life of the committee.	Access Agency Website	Yes
% of Recs Fully Implemented*	62.00%	Access Committee Website	Yes
% of Recs Fully Implemented Comment	16 of 26 recommendations have been fully implemented. They include all FY14 Recommendations 1-3, FY15 Recommendations #1-4, #6, #8, #9, FY21 Recommendations #1 #2, #5, #6, #9 & #10. In FY24, FY21 Recommendation #1 was completed via the My Family Health Portrait Project and FY21 Recommendation #6 was completed through Awardees under Comprehensive Cancer Control Program and the Breast Cancer in Young Women Cooperative Agreement. In FY21, FY15 Recommendation #8 and FY21 Recommendation #9 have both been completed with the implementation of Continuing Medical Education (CMEs) through Medscape and ACOG. In FY20: FY14 Recommendation #2, FY15 Recommendations #6, & #9 which address Patient & Provider communication were completed. CDC funded an effort to identify important health messages and resources needed to facilitate patient/provider dialogue regarding early breast cancer in FY17. In FY18, a Breast Health Education Evaluation occurred where CDC funded a contract to evaluate existing programs which educate Health Care Providers (HCPa) about HBOC and early onset breast cancer. The project was completed and deployed to the public in FY20. Two Continuing Medical Education (CME) Modules including The Educating Medical Providers about Breast Cancer in Young Women: Breast Cancer Risk Factors, Survivorship, and Breast Health contract awarded in FY15 and released in FY17 and The Understanding Early Onset Breast Cancer CME Module in FY20 address FY15 Recommendations #6,#8,#9 & FY14 Recommendation #3. Additionally, in FY20 a Risk Assessment Tool was created and is now available to health care providers on the CDC Division of Cancer Prevention and Control website. Also, resources have been developed for providers and consumers about Direct-to-Consumer Genetic Testing which has aided in the completion of FY21 Recommendation #8. CDC continues to expand upon the Bring Your Brave (BYB) Campaign which was most recently funded in FY21-FY25. Bring Your Brave is a large social/digital media campaign launched in 2015 to provide information about breast cancer to women younger than age 45. The campaign tells real stories about young women whose lives have been affected by breast cancer. These stories about prevention, risk, family history and survivorship bring to life the idea that young women can be personally affected by breast cancer. Through these testimonials, Bring Your Brave aims to inspire young women to learn their risk for breast cancer, talk with their health care provider about their risk, and live a breast healthy lifestyle. The FY21 contract focused primarily on HCP education and communication with young women. A project to develop additional video-based training resources for HCPs was funded through the CDC Center for State, Tribal, Local, and Territorial Support (CSTLTS) in FY18 and was completed in FY20. In FY17 CDC implemented the following efforts regarding recommendations 6 & 8: Doc Styles Survey: CDC implemented a survey about early onset breast cancer and provider behavior on the Doc Styles survey. Data collection was completed in June 2017 and analysis is complete. Bring Your Brave formative research: CDC implemented multiple rounds of formative research to engage with Heath Care Providers (HCPs) regarding their breast cancer education needs and resources; findings resulted in the development of a CME and various digital resources and web pages; Know: BRCA evaluation: engaged HCPs in qualitative research efforts to learn more about their needs and utilization of resources related to hereditary breast and ovarian cancer (HBOC). FY15 Recommendation #5 is supported in part through various DCPC research projects (i.e. genomics, alcohol, etc. The Know: BRCA (formerly BodyTalk) clinical decision support tool was launched in 2014 to address issues of hereditary breast cancer among young women. The resource includes content that encourages health care providers and young women to engage in dialogue about breast cancer risk. The resource was evaluated and completed in FY18 for efficacy and utilization. As a result of the evaluation Know: BRCA/Body Talk was modified to address issues identified in the evaluation in FY21 and it was relaunched to reflect the changes. It is now branded as the My Family Health Portrait: Cancer App (MFHP:Cancer), currently available for Android and IOS devices as of September 2023. Additional continued activities include funding grantees to support young breast cancer survivors and increase knowledge about breast cancer genetics and the use of the Know: BRCA clinical decision support tool. In FY20 a cooperative agreement was launched which focuses on supporting young breast cancer survivors including metastatic and underserved populations. The development of provider resources and patient navigation resources is also a part of this ongoing work which addresses FY15 Recommendation #9. FY21 Recommendation #10 is fully implemented as the DCPC Communications Office reviews pages every year with SMEs across the division.	Access GSA FACA Website	Yes
% of Recs Partially Implemented*	19.00%	Access Publications	No
% of Recs Partially Implemented Comment	5 of 26 recommendations have been partially implemented. FY21 Recommendation #8 is approximately 25% complete. The task is to develop simple, supplemental provider educational resources to address gaps in content and the DCIS and DTC genetic testing components have been complete. FY21 Recommendation #11 is approximately 50% complete. FY21 Recommendation #12 is approximately 50 % complete. The Division of Cancer Prevention and Control’s Guide to Healthy Living: Sexual Health and Intimacy is provided as a resource to help people with cancer cope with sexual health and fertility issues. It is not specifically for young women with breast cancer but is relevant. Both recommendations will likely remain partially implemented. FY15 Recommendation #5 is 50% complete. This recommendation is technically beyond the authority of the ACBCYW, however CDC is doing some of this with regard to genetics and Bring Your Brave campaign formative research. FY15 Recommendation #7 is 75% complete. This is a priority and work is happening under one of the MITRE Projects regarding EMR innovations at point-of-care. For example, through CDC Partner organizations such as the Patient-Centered Clinical Research Network, PCORnet, a nationally distributed research network that will link 70 million Americans to their EMRs. 5 of 26 recommendations have not been implemented (19%). A portion of these recommendations are under consideration for implementation and a portion are out of scope and will not be implemented.	Access Other	No
Agency Feedback*	Yes	Access Comment	N/A
Agency Feedback Comment*	CDC provides feedback to the advisory committee including the latest Division of Cancer Prevention and Control updates, up-to-date scientific evidence, new resources and materials as it relates to the public health campaign and update on recommendations via presentations during open committee meetings. The public also has access to this information during the public meetings and after meetings through the posted presentations and meeting minutes located on the advisory committee website. Information is also disseminated to advisory committee members via email as necessary.	Narrative Description*	The Advisory Committee on Breast Cancer in Young Women provides advice and guidance to the Secretary, HHS, the Assistant Secretary for Health, and the Director, CDC, regarding the formative research, development, implementation and evaluation of evidence-based activities designed to prevent breast cancer (particularly among those at heightened risk) and promote the early detection and support of young women who develop the disease. The advice provided by the Committee will assist in ensuring scientific quality, timeliness, utility, and dissemination of credible appropriate messages and resource materials.

COSTS

1. Payments to Non-Federal Members*		1. Est Paymnts to Non-Fed Membrs Nxt FY*
2. Payments to Federal Members*		2. Est. Payments to Fed Members Next FY*
3. Payments to Federal Staff*		3. Estimated Payments to Federal Staff*
4. Payments to Consultants*		4. Est. Payments to Consultants Next FY*
5. Travel Reimb. For Non-Federal Membrs*		5. Est Travel Reimb Non-Fed Membr nxtFY*
6. Travel Reimb. For Federal Members*		6. Est Travel Reimb For Fed Members*
7. Travel Reimb. For Federal Staff*		7. Est. Travel Reimb to Fed Staf Nxt FY*
8. Travel Reimb. For Consultants*		8. Est Travel Reimb to Consltnts Nxt FY*
10. Other Costs		10. Est. Other Costs Next FY*
11. Total Costs	$0.00	11. Est. Total Next FY*	$0.00
Date Cost Last Modified	3/14/2025 9:55 AM	Est. Fed Staff Support Next FY*
Federal Staff Support (FTE)*		Est Cost Remarks
Cost Remarks

Interest Areas

Category Area Applied Science Applied Sciences Basic Science Basic Sciences Civil Rights Minorities Native Americans Women Communications Broadcasting and Communications Health Health Care Medical Education Medical Practitioners Public Health Treatment Justice Research and Statistics Medicine Diseases Health and Health Research Illnesses Medicine and Dentistry Rehabilitation Rehabilitation and Disability Research Basic Research Research and Development Research and Statistics Social Sciences Risk Communication

Custom Links

Committee Level Reports